Glioblastoma- Ever hear of it?

Edit:
I decided to also make this a memorial thread for those who have passed away from glioblastoma ,famous and infamous.

Hi,

I wish I never did. September of 2025, the best friend I ever had was diagnosed with that. It’s the most aggressive and deadly form of brain cancer.

Ted Kennedy, Beau Biden, Neil Peart, the drummer from Rush and six Philadelphia phillies. Darren Dalton, Tug McGraw and John Vukovich. The other three I don’t remember. The Philadelphia inquire actually saved a piece of Veterans Stadium astro turf and tried to prove it was from the chemicals in it, they didn’t win. And then the thousands thousands who aren’t famous who have people that love them.

Earlier in September her left hand would just close for like 3 minutes. So she saw an orthopedic surgeon. He determined that it was from her spinal stenosis and she needed spinal fusion surgery. Barbara said to me, I’m going to get a second opinion this could be neurological. So she saw a neurosurgeon. He looked at the MRI and agreed with the orthopedic doctor. He was going to do the spinal fusion surgery. The next day she had spasms in her face. She Called the neurosurgeon. He requested a CAT scan of the brain as soon as possible. It revealed a brain tumor. One of which could not be determined until after the surgery when the pathologist makes that decision.

Her surgery was September 16th 2025. She came out of it well. As the doctor told her, even before the surgery , it’s going to come back. There’s a lot of blood vessels in your brain. It’s basically impossible to stop the cancer.

She did okay for 4 months. She could drive she could walk she could use the bathroom she could cook basic things that we all do. Then in the middle of January 2026 she fell. She thought it was neuropathy in her left foot. Her issues are on her left side. It wasn’t neuropathy. It was another medical condition caused by the brain tumor called Hemiplegia ,where one’s left side or right side can be paralyzed usually for good sometimes after months and months of Rehabilitation they may recover.

She’s been bed ridden since the middle of january. It’s so sad. She says things to me like I have no quality of life, I’m overwhelmed and I need a miracle. A couple weeks after she I’m ready for heaven. She just lies there. She’s gained 50 pounds which is not her fault. Totally, totally dependent on the nurses and aids. Sometimes she has to wait 20 or 25 minutes for them to get a bedpan.

I see her twice a week. I’ve known her since early October 2000. She and I were an item for 5 years! So we’ve been friends for more than 20 years. The only ex-girlfriend that I have had that has remained my friend. She’s pretty she’s intelligent she’s caring she’s patient got a great sense of humor.

She worked for 45 freaking years of her life in the medical field and pharmaceutical field and was going to retire in April 2026 and now all the money she saved, hopefully there’s some left, will be going for her care. No Twilight of one’s life.

So if you have a friend or family member who has glioblastoma, God bless them and enjoy their company.

As Jimi Hendrix said, “The story of life is just a wink of the eye. The story of love is hello and goodbye.”

Until we meet again.

:folded_hands:t2: :folded_hands:t2: :folded_hands:t2:

Photo was taken July 30th 2006. My mom’s 78th birthday. She’s the brunette. Barbara obviously on the left ,two months to the day before her 46th birthday.

On September 11th 2006 I took my mom to Italy to see where her mom and dad were born and Barbara joined us. I have four relatives who lived over 100 years old.

It was wonderful to go to Italy and visit relatives that I’ve never met before. My great uncle was 95 and still drove my great aunt was 90. My grandmother was in Ohio she was 98.My other five great aunts and great uncles were in heaven.

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Sorry for your loss.

Unfortunately I knew 3 women that had it.
My friend Randy lost his wife to it.
My friend Steve lost his daughter to it, she was still in college.
My friend Ray nearly lost his wife to it, twice.

Fuck Cancer!

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I forgot to mention something important! Barbara still alive. She was given 6 months to live in the middle of february. No quality of life I’m sure she’d rather be in heaven I know I would be. I had two other friends that died from cancer. It’s all evil. Mesothelioma and pancreatic. But Barb’s case is worse because she can’t do anything. They could walk they could drive they could cook they were active until like a week before they died there’s a huge difference you know you’re going to die from the fucking disease and we’re going to torture you before it happens. I agree with you fuck cancer sorry for your losses

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We lost my wife’s mother back in September. Bile duct cancer. My condolences to you all.

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Thank you. Sorry for your loss.

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Gord Downie from The Tragically Hip and Neil Peart’s brother, Danny, also passed from glioblastoma.

I’m sorry for your friend. I hope she finds comfort and peace soon.

Worrub918 says

Gord Downie from The Tragically Hip and Neil Peart’s brother, Danny, also passed from glioblastoma.

I’m sorry for your friend. I hope she finds comfort and peace soon.
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^^^^^

I hit something deleted and screwed up your message!

Thanks. Me to. They gave her 6 months to live in february. In her case and I’m sure others. It’s more like 6 months of existing.

She can do nothing on her own. Bed ridden. I’ve noticed the last week she’s responding less and less to my texts… I will see her tomorrow or sunday.

Wow! I never knew Neil Pearts brother passed away from the same Dreadful disease.:folded_hands:t2:

Apologize I’ve been hitting wrong buttons or whatever and screwing up my post others post and then I had to fix it!

:folded_hands:t2:RIP Gord :folded_hands:t2:


Another fine Canadian.

I saw Rush it was either 1982 or 1983 at the Spectrum in Philadelphia. My first concert was also there in 1977. Pink Floyd Animals tour. Both concerts were remarkable.

:folded_hands:t2:RIP Neil​:folded_hands:t2:


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:folded_hands:t2: RIP TUG​:folded_hands:t2:


My sympathies. Couple of years ago, my lovely wife and I were waiting for our house to be finished, living in the meantime in our campervan. Broken promises and dreams led to us becoming homeless, her dream house that she’d planned every detail of wasn’t to be. Such disappointed expectations are ruinous, she had a breakdown and was hospitalised.

Picked her up on 11th March 2023 to start over. We got new jobs, found a lovely rented property and waited for it to become available. While we waited, she began to have difficulty swallowing. An aggressive cancer was diagnosed, chances of survival post treatment estimated at about 30%.

She died 11th March 2024. It turned my world upside down, the treatments of radiotherapy and chemo were non-stop for months, tube feeding liquid nutrients, various meds to add several times a day. Just exhausting on every level, knowing all the time her chances weren’t good. It spread, ran amok around her body, and despite all our bravery, hope and positivity, she died.

What I’ve gained, and this is the important bit for anyone facing similar, is humility. The realisation that we’re powerless. With that comes an acceptance, a sort of handing over of the reins. I found I didn’t get angry, I couldn’t hold any resentment, I walked through the deepest fear imaginable. It stripped me bare really, the path of sorrow leads to holy ground.

@3rdGen33 there is a book that was recommended to me by a lovely lady called Robin Lassiter. She has her own YouTube and Spotify channel which is well worth investigating. I chatted with Robin about the spiritual change I’d undergone as a result of the trauma, and she suggested The Wild Wind of Sorrow by Francis Weller. I suggest it to you, with best wishes.

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Thank you Rich. I’m so sorry about your wife.

Pain is the touch stone to all spiritual growth. None of us want it ,but we get it, it is what we do with it that matters.

This will be my last memorial for the day. It’s actually emotional remembering these people.

:folded_hands:t2: RIP DUTCH DAULTON​:folded_hands:t2:


I’ve edited slightly fella, there’s a book that has some deep wisdom on grief and sorrow. :folded_hands:

Grief is the price of love.

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I visited Barbara today. I see her every 5 to 7 days. I’ve noticed the last 3 weeks or so that she has blank stares and is basically emotionless. These are symptoms of this terrible , deadly and horrific disease.

She’s not the same person and never will be her old self.

It’s heartbreaking. I haven’t seen her laugh or smile in probably more than a month.

I saw Barbara Thursday April 9th. She has declined a lot. She goes on hospice today. It makes me angry.

This is personal on my part but I’m fine with it. For 7 years I tried to get sober and I couldn’t because I didn’t want to, have faith or a belief in a god. And I started to listen and started to pray and I got sober. April 20th will be 29 years. But with this disease of Cancer, how it’s eating away and killing my best friend, I’ve lost faith and I’m angry at god.

I think I mentioned this in the earlier post. I had two friends who died from cancer one had mesothelioma and the other one pancreatic cancer. The difference between them and my friend Barbara ,with the cancer that she has is that they were mobile basically up until the day they died. She has had NO quality of life for four and a half months. Bedridden. A lot of weight gain which is not her fault. She tried and tried to get on her feet again Physical Therapy didn’t help.

For those who have addictions of drugs, alcohol, cigarettes etc etc we have a choice.

We can continue that path and and either die or end up in an institution or jail or we could change and lead a happy life.

With cancer we have no choice. We’ve said that in AA meetings many times. I choose IF I want to drink today.
If I have cancer the only choice I have is to try to stay positive and if there still is a God hopefully I am cured.
With glioblastoma, it’s basically a death sentence. Are we going to live 6 months a year a year and a half. There is Not much hope. And for some like Barbara who fell as a result of the brain tumor which triggers another disease or condition called Hemiplegia, where either the left side or right side of the body is paralyzed, you’re basically bedridden for the rest of your life. You know you’re going to die because you are cognizant of that fact, in the meantime you’re going to suffer and be stripped of all simple things that we take for granted.

Very difficult to see her because that’s not her. But I have to continue seeing her until she’s no longer here.

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I saw Barbara Monday April 13th and she has declined even more than last thursday. She can’t see out of her left eye she can barely see out of her right eye she fades in and out of consciousness. She could barely say a few words . When I left I kissed her on the cheek and told her I loved her. And she said I love you. I was shocked cuz she didn’t say much at all the 4 hours I was there .

I found out that today she’s no longer able to swallow. I hope she leaves this Earth soon so she could be with some of her family who preceded her to heaven.

I really think it’s a matter of hours or a few days. She has a lot of good friends and family visiting from Florida and other parts of the United states and Germany.

:germany: :italy: :indonesia: :united_states:


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